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Episode details

Local Radio,29 Sep 2026,10 mins

The woman with Butterfly Skin

Desi Stories

Available for over a year

Assya Shabir has Epidermolysis Bullosa, which is also known as Butterfly Skin. It means her tissue is extremely fragile. At birth, she was told she wouldn't live past 24 hours. She is 39 and speaks to Raees Khan about living with the condition.

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